:
Good evening and welcome to this meeting on the Special Joint Committee on Medical Assistance in Dying.
I'd like to begin by welcoming members of the committee and all our witnesses, as well as those watching on the web.
My name is Yonah Martin. I'm the Senate's joint chair of this committee. I'm joined by René Arseneault, the House of Commons joint chair of the committee.
Today we continue our examination of the degree of preparedness attained for a safe and adequate application of medical assistance in dying where mental disorder is the sole underlying medical condition, in accordance with recommendation 13 of the committee's second report.
I want to remind members and witnesses to keep microphones muted unless recognized by one of the joint chairs. As a reminder, all comments should be addressed through the joint chairs. When speaking, please speak slowly and clearly. For those appearing by video conference, interpretation is available. You have the choice, at the bottom of your screen, of floor, English or French.
With that, I wish to welcome our witnesses this evening.
Thank you very much for your presence.
As individuals, we have Jocelyn Downie, professor emeritus at the Health Justice Institute of Dalhousie University's Schulich School of Law, and Trudo Lemmens, professor and Scholl chair in health law and policy at the University of Toronto's faculty of law, by video conference.
From Health Canada's strategic policy branch, we have Jocelyne Voisin, assistant deputy minister, accompanied by two officials with the health care programs and policy directorate: Sharon Harper, director general, and Jacquie Lemaire, senior policy adviser. From the Department of Justice, we have Myriam Wills, counsel, criminal law policy section.
:
Good evening. Thank you for the invitation to speak with you.
My name is Jocelyn Downie, and I'm a professor emeritus in the faculties of law and medicine at Dalhousie University. I've been honoured to be made a fellow of the Royal Society of Canada and the Canadian Academy of Health Sciences, and to be named to the Order of Canada for my work on this topic.
I start tonight with the committee mandate “to verify the degree of preparedness attained for a safe and adequate application of MAID” in MD-SUMC situations, with particular reference to standards of practice referred to by the expert panel.
On this metric, preparedness has already been established through your hearings. You know that the model practice standard was published in March 2023, and you have received uncontroverted evidence that the professional regulatory bodies are ready. However, in case you go beyond this mandate and/or adjust the metrics, more needs to be said.
First is the charter. A barrier to access to MAID based on a diagnosis of a mental disorder is a limit on the section 7 and 15 rights of persons with mental disorders. The arguments for this can be found in the testimony of numerous witnesses, briefs and legal decisions. A purported lack of preparedness might be presented as an attempt to justify the limits on the rights under section 1. However, that argument would fail.
The federal government is prepared. It has amended its reporting regulations, created an independent expert panel on MAID and mental illness, created an independent expert task group to draft and model practice standards, funded the independent national accredited curriculum to train MAID assessors and providers, and supported a knowledge exchange workshop that brought together MAID assessors, providers and psychiatrists from every jurisdiction in Canada to prepare together for the implementation of MAID MD-SUMC. Furthermore, the very people tasked with regulating the conduct of MAID assessors and providers have confirmed for you that they are prepared.
Clinical preparedness has been established through the delivery of multiple training sessions across the country, the existence of a community of practice among expert psychiatrists coast to coast, the experience that MAID assessors and providers already have from assessing MAID requests from persons with mental disorders, the experience that psychiatrists already have from acting as consultants for both track one and track two patients, and the development of protocols and policies at the programmatic level.
Any lack of political preparedness is not a justification for limiting charter rights. Any purported lack of clinical preparedness by some psychiatrists is not a justification for limiting charter rights. Not all clinicians in Canada were prepared for MAID when it first came in. Any individual psychiatrist who does not feel prepared is under no obligation to participate in MAID. It is abundantly clear that psychiatrists from across the country—including eminent psychiatrists, eminent experts in psychiatry—are prepared.
Some might say that not all Canadians are prepared. However, not all Canadians were prepared for MAID. Furthermore, no person is ever compelled to get MAID. The protection of charter rights does not and cannot wait for some subset of the public to be prepared. A preparedness claim, therefore, cannot serve to save the limits on charter rights that any further delay would entail.
Now let's turn to the division of powers under sections 91 and 92 of the Constitution Act. The federal Parliament must approach the issue of preparedness with attention to its own jurisdiction. It is abundantly clear that it is prepared. Even if you aren't persuaded that all the provinces and territories are ready—which is counterfactual, given the unequivocal evidence from the provincial-territorial regulatory colleges, as well as information available about MAID programs and PT oversight mechanisms—the division of powers dictates that you not delay further.
Look to history. Consider, for example, the 1969 act that made abortion legal under certain conditions. The act was passed in May 1969. Royal assent was given in June 1969. The abortion provisions came into force in August 1969. Parliament didn't wait for the newly required therapeutic abortion committees to be established in the hospitals across the country. The federal Parliament made the changes it felt were right to protect women's rights, and it left it to the provinces and territories to do what was necessary to implement the changes at their level.
There's also a logical and ethical basis for this view of preparedness. If the federal Parliament were ever to tie the changes to the Criminal Code to provincial and territorial preparedness, it would be allowing the provinces and territories to subvert the federal Parliament's decisions with respect to criminal law. It would also be allowing any laggard provinces and territories to hold hostage those other provinces and territories that got ready. It would allow the protections of the charter rights of people in the provinces and territories that got ready to be blocked by those provinces and territories that chose to not be ready. This is something the federal Parliament should not be a part of.
I leave you with one final thought. The trial decision in Carter was released in 2012. Truchon was decided in 2019. Bill was passed in 2021. It is now 2023. A further delay would take us to 2025. Justice delayed is justice denied.
Thank you.
:
Good evening, chairs and members of the committee.
[English]
Parliament's core obligation is to protect the life and promote the well-being of Canadians. Expanding MAID to include it for reasons of mental illness is an unprecedented threat to that. It appears driven by, one, a flawed claim or perception of constitutional obligation; two, a strong prior commitment to expansive MAID by a core of people with dominant input in the policy process who overwhelmingly emphasize the need for access, not protection; and three, a lack of appreciation of how problems in jurisdictions that allow it will be even more serious here, because of weaker legal standards.
First, there is no constitutional requirement to introduce death to “solve” often severe suffering from mental illness. This is emphasized in a letter to cabinet by 31 Canadian law professors, including constitutional and human rights scholars; in several academic publications, including our forthcoming article; and in committee submissions by law scholars and the vulnerable persons standard.
These also clarify why it is not discriminatory to limit access to MAID. No court—definitely not the Supreme Court—has ruled that death induced by physicians is an inherently or predominately beneficial procedure to which all must have access as a right. It is a complex practice that the court ruled should be permitted in exceptional circumstances as a carefully crafted exemption to a crucial Criminal Code prohibition.
In fact, the opposite is true. Singling out disabled persons—and, soon, also persons with mental illness whose disease cannot be determined to be irremediable—exposes disabled persons already subject to systemic discrimination to a serious risk of death. This also threatens their right to life. It attaches the highest possible discriminatory stigma to what it means to have mental illness and to be disabled: namely, that our system offers them death rather than sufficient support, while it continues to protect others.
Second, before this committee, some medical experts insist we need to offer MAID for mental illness as a “constitutional right”, while they hesitate when asked whether we can do so safely and whether irremediability can be determined in individual cases. That, I would put forward, is a caricature of how cautious policy and law-making should work. Medical, policy and ethics experts must inform government, MPs and the courts of what MAID expansion will mean. With Canada's MAID policy, this has been turned upside down: Parroting constitutional rights rhetoric, government has given some with a prior vested commitment privileged positions to implement it.
It is striking that those who now reassure us that concerns are unwarranted claimed from day one that MAID for mental illness was unproblematic and should not be treated differently, yet they were given authority to evaluate if other safeguards were needed, and then failed to recommend them, which leaves it up to the discretion of individual professionals whether people will live or die. Authorities didn’t even reach out to the broader mental health community when a patient advocate and bioethicist resigned in protest from the expert panel on MAID and mental illness. It is further troubling, as one submission highlights, that some of the same experts have recently provided misleading information to MPs when the recent bill aimed at suspending the expansion went up for a vote in Parliament.
Third, the claim that we need only a few psychiatrists willing to do this because few patients will qualify is wrong; instead of reassuring, it is concerning.
First, in Belgium and the Netherlands, the practice remains controversial in part because a few psychiatrists have driven the practice in problematic directions. A criminal prosecution temporarily stalled expansion in Belgium, where one psychiatrist was involved in nearly half of the mental health euthanasia cases from 2007 to 2011. In those countries, physicians must agree that there are no other options left. Approval rates for psychiatric euthanasia are low—5% to 10%—mostly because of lack of irremediability, but when euthanasia for mental illness became more broadly practised, demand for it increased steeply, from 500 in 2008 to 1,100 in 2015. Demand in Canada will be higher, and no legal constraint will keep the approvals low.
When regulators state they are ready, we need to ask, “For what?” Yes, there will be flimsy regulations with rules that leave so much discretion that there will be little basis for criminal prosecution or professional discipline. Our law and professional rules will offer a largely open-ended licence to end the lives of mentally ill patients. This is an egregious form of discriminatory abandonment of mentally ill Canadians and their families.
[Translation]
I urge you not to hide behind a rhetoric of a constitutional right to let this expansion go forward.
:
Thank you, chairs and members, for inviting us here today.
I want to thank the committee for their work and commitment on this issue so far, and continuing.
[Translation]
I would like to start out by saying that Health Canada believes that Canadians deserve to live in comfort and dignity, with access to care, including end-of-life care, that is appropriate to their needs and that respects their wishes.
[English]
We also recognize that MAID is a deeply personal choice, and we are committed to ensuring our laws reflect Canadians' evolving needs, protect those who may be vulnerable, and support autonomy and freedom of choice.
The federal Criminal Code of Canada permits MAID to take place only under very specific circumstances and rules, as you know. Anyone requesting MAID must meet stringent eligibility criteria to receive medical assistance in dying. Also, any medical practitioner who administers an assisted death to someone must satisfy all the safeguards first.
[Translation]
Given your mandate, I appreciate that your focus is on the system's preparedness to offer medical assistance in dying to persons with mental illness as the sole underlying medical condition.
[English]
As part of our work to prepare for the lifting of the exclusion for MAID eligibility for persons suffering solely from mental illness, Health Canada has been working closely with provinces and territories, as well as stakeholders in the mental health sector, health professional associations and others to address the recommendations of this committee and those of the expert panel on MAID and mental illness.
For instance, Health Canada supported the development by experts and release of a model practice standard for MAID and a companion document, which is “Advice to the Profession”. We also funded the Canadian Association of MAID Assessors and Providers, CAMAP, to develop and deliver a nationally accredited, bilingual MAID curriculum. Registration continues to grow with, at last count, 901 registrants as of November 17. Of these, 490 are physicians, 132 are psychiatrists and 279 are nurse practitioners. The curriculum includes seven modules, including a module on mental illness as a sole underlying condition.
We also have enhanced our existing data collection on MAID through the federal monitoring system to help determine the presence of any inequalities or disadvantages in requests for the delivery of MAID. We continue to engage with indigenous peoples, as requested and recommended by this committee, through both indigenous-led and government-led activities, which will culminate in a “What We Heard” report in 2025.
Finally, to support case review and oversight, we are working with the provinces and territories to enhance consistency and opportunities to share best practices on oversight mechanisms that exist in those jurisdictions.
[Translation]
These resources will provide enhanced support for both the assessment and provision of MAID in situations where death is not reasonably foreseeable, such as Parkinson's, as well as in situations where the request is based solely on a mental illness.
At the federal level, we have been working diligently to ensure that the tools and resources are in place to support clinicians and regulators before March 2024. I know from my engagement with my provincial and territorial colleagues that they are working hard to prepare their health care systems in the lead‑up to the lifting of the restriction. Many MAID assessors are already dealing with track two cases, where death is not reasonably foreseeable, which includes people who may have a mental illness combined with other conditions.
[English]
That being said, the level of preparedness does vary across the country, and some provinces and territories have noted concerns, most notably with regard to ensuring enough trained professionals, especially with mental health expertise.
For assessment of track two cases, practitioners have told us that these requests are generally more complex and challenging, because of the complexity of the conditions involved and the application of the existing rigorous eligibility criteria and procedural safeguards. This means that clinicians assessing MAID are spending much more time gathering the necessary information about the person and their condition. The process often involves a review of many years of treatments, surgeries and/or medications and consultations with experts in order to exercise due diligence and make a decision about eligibility.
The typical underlying medical conditions cited in track two are neurological diseases such as Parkinson's disease or multiple sclerosis. We know from the latest annual report in 2022 that track two cases made up only a very small proportion of MAID requests. There were 463 MAID provisions under track two, which represented 3.5% of the total number of MAID provisions and fewer than 0.2% of all deaths in Canada. In 2021, a partial year, 223 individuals with track two requests received MAID, representing only 0.07% of all deaths in Canada.
[Translation]
Again, I want to recognize the important work done by this committee to date.
[English]
Your reports have provided valuable insights into the views of various stakeholders, and federal officials have worked closely with provinces, territories and key stakeholders in the MAID community to continue to use these recommendations to support the improvements in the delivery of MAID across Canada.
Thank you.
:
In my view, there are not. I think the safeguards that we have are easily circumvented. They are already circumvented in the context of track two. I would urge committee members to watch, for example, the recent documentary by Al Jazeera, where we see Rosina Kamis receiving MAID in the context of track two. In my view, it shows that you can drive a truck through some of the requirements that are supposedly protecting people from receiving track two MAID.
I look at the practice guidelines at the CAMAP, educational documents that have been prepared, the model practice standard and the guidelines. I see an overwhelming emphasis on the need to provide access to MAID, even to such an extent that, for example, in the CAMAP documents, there is an explanation of how you can easily turn track two MAID into a track one MAID. In other words, even if you're assessed on track two.... For example, the CAMAP document states specifically that by refusing antibiotics for a serious infection, you can turn your track two into a track one.
I would say that, for me, this is symbolic of the way our regulatory approach has been in the context of track two, and this will apply to the context of mental illness.
:
No, I don't believe so.
One thing we have to pay close attention to is the fact that “grievous and irremediable” is in the law—it's not a clinical term—and “serious and incurable illness, disease or disability” is in the law. It is, in fact, part of the definition of “irremediability”. When people talk about not having a clinical definition, that's inappropriate, because we're not looking for a clinical definition of a legal term. Legal terms from the statutes should be defined in the statutes—and they are. What happens is that clinicians have to determine whether that definition is met. That's where you develop practice standards, and that's what we have. In the model practice standard, there's a clear statement about “serious and incurable illness” and so on, so you wouldn't be able to show it was missing.
The other thing I'd add is this. Of course, “natural death” becoming “reasonably foreseeable” is in the Criminal Code. There isn't consensus among clinicians—there certainly wasn't when it first came out—about what this means.
It's not a justification for violating the rights.
:
Thank you, Madam Chair.
It is difficult for me to follow the interpretation when my colleagues are commenting out loud. So I call for calm and serenity while we are talking about medical assistance in dying.
Ms. Downie, you sent us a short text where you said that the Carter decision and the Baudouin ruling did not exclude mental disorders.
Can you tell us more about that and explain why that is the case? Earlier, we were told that the Carter decision did not allow using a mental disorder as the sole medical condition for obtaining medical assistance in dying. You also said that the Baudouin ruling, among others, rejected the general exclusion based on membership in a group, such as vulnerable persons. I don't know if you remember.
Can you explain to us how the Carter decision would be unconstitutional if it was decided to give people with mental disorders access to medical assistance in dying?
:
The key is to look back at Carter and recognize that the declaration was that if you create a barrier to access for people who have a grievous and irremediable medical condition causing enduring and intolerable suffering, that is unconstitutional. They did not say that mental disorders are not a part of grievous and irremediable medical conditions. They did not exclude them. They could have. They would have, had they wanted to.
That's the analysis. Mental disorders are grievous and irremediable medical conditions. Therefore, it would be against the Carter declaration if you had a barrier to access for people with mental disorders.
The other thing is that it is worth looking at the decision. I knew this issue would come up today, because it always does. The EF decision is very clear. As it can be seen in Carter 2015, the issue of whether psychiatric conditions should be excluded from the declaration of invalidity was squarely before the court. Nevertheless, the court declined to make an express exclusion as part of its carefully crafted criteria. You had a circle, and it didn't carve it out.
The other thing I would add is that we also had the G decision, which is important for us to remember now, from the Supreme Court of Canada. It helps us here because it shows that you can't do a group-based exclusion. You must do a case-by-case assessment. There's nobody saying that there aren't some complex cases, but we have to do them case by case.
Mr. Scarpaleggia brought up the clinical differences between cancer and the predictability of a mental disorder. Earlier, you talked about the expert panel report. Does that report not provide additional safeguards that further frame the expansion of access to medical assistance in dying to persons with a mental disorder? I am thinking, for example, of the obligation to provide prospective oversight, which is currently not found anywhere in Canada in the implementation of medical assistance in dying. It's retrospective. I am also thinking of the obligation to obtain the opinion of a second psychiatrist, who must be independent of the care team.
Are there no safeguards within that? I would like you to tell me about those safeguards. We are prepared to go all the way to the Supreme Court, if necessary, and the Supreme Court will have to determine whether this expansion is reasonable or not and say what safeguards are necessary to ensure the safe use of medical assistance in dying, if we do not want to go down the so‑called slippery slope.
What additional arguments or safeguards do you think this expert report provides in order to expand access to medical assistance in dying to persons with a mental disorder?
:
Thank you very much, Madam Chair.
Thank you to all of our witnesses for helping to guide our committee through this. It's not an easy subject, and I say that with experience, having been on this committee from the get-go, both in the last Parliament and in this one.
Dr. Downie, I'd like to start with you.
I'll freely admit that, personally, I do have a level of discomfort when we talk about mental disorders and access to MAID. I also appreciate that our committee's mandate is quite narrow. We're not tasked with relitigating the law. In fact, the House of Commons just had a vote on that, so we have to respect that process. We're being tasked as a committee with verifying the degree of preparedness, and I did listen to your opening remarks. I'll tell you why I have a level of discomfort.
I represent the riding of Cowichan—Malahat—Langford on Vancouver Island. I walk around my communities, and it is quite obvious that there is a mental health crisis going on. You can see people in obvious need of help who are not getting the services they require. It's tearing parts of my community apart.
As a parliamentarian—not only as a member of this committee, but also as someone who is trying to do right by his constituents—how do I verify the degree of preparedness? How do I satisfy that when I have that reality at home?
:
I think one of the things you could do is to ensure that the lack of supports and services is not driving requests for MAID—and it is not. We have good, solid evidence from the other permissive jurisdictions over the years, and we now have good data from Canada as well that it is not what's driving requests for MAID.
Then, what you do is say that, okay, both of those things are incredibly important. We need to protect the rights the Supreme Court of Canada acknowledged, and it set out the parameters in Carter. We need, in parallel, to promote supports and services for people with mental disorders, all the various things that bring about socio-economic vulnerability.
Parliament has an obligation to do those two things at the same time. Don't hold individuals' rights hostage to Parliament's failure to promote mental health supports and services, and disability supports and services. Do both of them. I think it's your responsibility to do both at the same time. When you're answering your constituents, you need to be able to tell them those are not the drivers of MAID.
People getting MAID are actually very privileged. They're white. They're well off. They're highly educated. They're not in institutions. They have families. The picture is one of privilege. That doesn't mean we don't want to look after the people who are vulnerable.
My question is for Ms. Downie and Ms. Voisin.
Generally speaking, people are uneasy, even those around the table. There seems to be a sense that making MAID available to people with mental health issues is like having an open bar that everyone can take advantage of.
However, one of the witnesses we heard from was a psychiatrist who said that she had seen only three patients in her 35‑year career who would be eligible for MAID, given the serious criteria for assessing chronicity, long-term medications and so forth.
That means that a person in crisis could not receive MAID, and two other witnesses confirmed that.
You said that there weren't enough clinicians to do the assessments. Is that going to be a problem? If it takes a clinician 35 years to identify three eligible patients, does that mean we would need 100 psychiatrists?
The floor is yours.
I have a minor clarification. The Senate proposed imposing an 18‑month time limit on the MAID eligibility exclusion for individuals whose mental health was the sole underlying medical condition. The House of Commons extended that period to 24 months and proposed other provisions. [Inaudible—Editor] is therefore in place. The purpose of the proposed 18‑month time limit was to establish a safeguard system for people. The report was very clear.
My question is about the committee's mandate as it relates to upholding the Constitution. We amended the Criminal Code, and the provisions we put in place were very clear. From Professor Downie's comments, the provisions seem to be quite satisfactory. The committee's mandate is not to review them, but to make sure that they are clearly understood and will be implemented.
I take from your opening remarks, Ms. Downie, that we are doing more than we need to because implementation falls on the provinces, not the federal government. We want to make sure that the provinces are doing what they are supposed to, but our constitutional duty doesn't go that far. Is that correct?
[English]
That's for you and maybe Ms. Wills.
:
Thank you for the question.
I should say that we were not mandated to discuss the rationale for legalization. Jersey put forward two options for legalization. One was a terminal illness diagnosis, kind of styled track one but narrower than in the Canadian context. The second one was a very broad track, which compares with the Canadian track two. I was not completely surprised, but I was happily surprised, to see that my two colleagues, who actually are for the legalization of assisted dying in some form, agreed, looking at the evidence, that the Canadian model was not the approach they should be taking.
We actually recommended against an open-ended access to MAID for unbearable suffering. Psychiatric MAID is explicitly excluded, as it is in most jurisdictions around the world, or in many jurisdictions around the world that have legalized some form of assisted dying. Simply, this is also because most jurisdictions limit access to MAID or euthanasia or assisted suicide in the end-of-life context to people who have a terminal illness diagnosis, where mental illness would not fulfill the criteria of a clearly identifiable survival prognosis or terminal illness prognosis.
:
We are now beginning the second hour of today's meeting. Please take your seats.
Welcome to the witnesses, who are all joining us remotely. During the second hour, we have with us, as an individual, Dr. Stefanie Green, MAID practitioner and adviser to the British Columbia Ministry of Health; Julie Campbell, nurse practitioner, Canadian Association of MAiD Assessors and Providers; and Dr. Gordon Gubitz, division of neurology, department of medicine, Nova Scotia Health.
We are really pressed for time today, so you will each have five minutes to give your opening statements.
We will start with you, Dr. Green.
[English]
You have the floor for five minutes. It's very tight.
The floor is yours.
:
Thank you for this opportunity.
My name is Stefanie Green, and I'm a physician with 30 years of clinical experience.
In June 2016, I began working almost exclusively in assisted dying. You may read of my credentials in my written brief. I've no personal or professional stake in the outcome of your deliberations, but I remain committed to providing the highest standard of medical care possible under any and all legislation.
If the purpose of this committee is “to verify the degree of preparedness attained for a safe and adequate application of MAID” in MD-SUMC situations, your work should not be complicated. Clearly, there is a high degree of preparedness. I point your attention to the numerous readiness activities plainly outlined in the written brief of CAMAP, and those referenced by Dr. Mona Gupta and Dr. Douglas Grant, and tonight by Professor Downie.
There is readiness at the federal level. There is stated preparedness by the medical and nursing regulatory bodies, as well as by professional associations. Clinical teams in British Columbia, Alberta, Saskatchewan, Ontario and Nova Scotia have all confirmed their readiness. I can speak more to this in our discussion if you wish.
Regardless of what this committee ultimately recommends, I am most concerned that it be based on fact and not on any fundamental misunderstanding. I submit the following three points of information for clarity.
Number one, consensus is not and has never been required in the development of medical practice. There's no consensus on many medical practices—hormone replacement therapy for women, safe injection sites, use of ketamine for treatment-resistant depression. This lack of consensus is not taken as a reason or justification to prohibit these practices. There is no consensus among clinicians about MAID itself, yet that did not and does not stop MAID from being permitted under the law.
Medical practice does not start with training all clinicians before the practice is permitted; rather, it starts with training some, who then train others over time. Only clinicians with the professional competence to provide the intervention are permitted to do so, by the standards already published and already enforced by the colleges of physicians and surgeons or colleges of nurses in every province and territory.
Any suggestion that consensus is required before moving forward with MD-SUMC is opposition to MAID disguising itself as a benchmark.
Number two, legislation is clear regarding MAID eligibility. We need to stop focusing our attention on a person's diagnosis, mental disorder or otherwise, and look to the eligibility criteria—the condition must be incurable, irreversible, unrelievable.
Clinical understanding and implementation of MAID legislation continues to evolve and mature. The recently published model practice standard for MAID has contributed significantly to this understanding.
As an experienced MAID practitioner and as one who teaches others how to approach this practice, I would state as clearly as possible for your recognition that in situations of MD-SUMC, someone in crisis is not eligible for MAID. Someone who is newly diagnosed is not eligible for MAID. Someone who hasn't had treatment, or refuses all treatments with no rationale, or is seeking MAID due to socio-economic vulnerabilities is not eligible for MAID.
Number three, we have enough psychiatrists already involved to move forward. Legislation requires two independent clinicians to find a patient eligible before they can proceed. For patients whose natural death is not reasonably foreseeable, a clinician with expertise in the condition causing the person's suffering must also be involved.
Psychiatrists may therefore potentially play two different roles: they may be assessors or providers of MAID, although few will be required for this role, or they may be consulted as clinicians with experience in the condition causing the person's suffering. Psychiatrists are already being consulted as clinicians with expertise in many applications, because they already possess the skills and training to be considered experts in their field. Canada has nearly 5,000 psychiatrists already adequately trained to continue to fulfill their role of expertise in MD-SUMC situations.
Over 100 psychiatrists have already registered their interest in becoming involved in MD-SUMC. This represents 2% of all psychiatrists in Canada. Last year, about 2% of all physicians in Canada provided 13,000 MAID procedures. I would suggest that 2% of our psychiatrists are sufficient to consult on what is rationally expected to be significantly fewer MD-SUMC cases.
Preparedness for MD-SUMC is clear. Please do not let misinformation distract or cloud your deliberations on this point.
Thank you.
:
Thank you for inviting me here today.
My name is Julie Campbell. I'm a nurse practitioner and the vice-president of the Canadian Association of MAiD Assessors and Providers, or CAMAP. CAMAP represents professionals who work in the delivery of MAID in Canada. CAMAP does not take a position on MAID MD-SUMC. We are focused on, and committed to, supporting our members to provide the highest standard of medical care within the law.
As part of this commitment, CAMAP has, over the past two and a half years, developed the Canadian MAID curriculum, or CMC, the first comprehensive, nationally accredited, bilingual and evidence-based educational program to support the practice of MAID in Canada. It aims to educate new MAID practitioners, advance the skills of existing MAID practitioners, and help standardize the approach to care by supporting those who deliver MAID care from coast to coast. On August 21, 2023, the CMC was launched, and the enthusiastic response from clinicians exceeded expectations. Feedback from clinicians who have completed modules has indicated very positive responses when asked if they felt that their knowledge and confidence had increased.
In addition to expertise in MAID assessment and provision, CAMAP members also carry a variety of clinical expertise in many areas, including psychiatry. Our members rely on colleagues who act as consultants in their area of expertise. When an assessment is completed for a patient without a reasonably foreseeable natural death, and for whom neither assessor has both expertise in MAID and expertise in the condition causing the patient's suffering, we rely on these consultants to provide their expertise in the condition to add to the assessors' expertise in MAID assessment.
The difference between the role of assessor and the role of consultant is important to understand. Our psychiatrist colleagues have, by virtue of their extensive training and expertise as psychiatrists, advanced knowledge on capacity decisions and mental disorders. We have utilized their skills as consultants for any patient who requires it. This is not specific to patients with MD-SUMC, and it may apply to both patients with and without a reasonably foreseeable natural death. For patients with MD-SUMC, we will utilize their skills once again.
In Canada, there are approximately 5,000 psychiatrists who, by virtue of their education and skill, may act in the role of a consultant. Included in that, there are psychiatrists who have sought and obtained expertise in MAID assessment. To date, more than 100 psychiatrists have begun or completed training with the CMC, demonstrating a significant level of interest of this subset of psychiatrists, who will then both be a source of expertise from their respective backgrounds and have expertise as assessors.
Since 2016, we have safely assessed patients requesting MAID who also had comorbid mental disorders. Part of our thorough, thoughtful, and safe approach to eligibility assessment has always been to see the patient as a whole. To help our members, we have developed clinical guidance documents such as “Assessment for Capacity to give Informed Consent for Medical Assistance in Dying (MAiD)” and “Medical Assistance in Dying (MAiD) Assessments for People with Complex Chronic Conditions”. These documents have helped guide our members to safely assess and provide for patients with complexities. They have helped us develop experience that will be relevant to assessing patients with requests for MAID MD-SUMC.
As is standard in medical practice, we are evolving each day, sharing our best practices and gaining experience, and we now have almost seven years of experience upon which to draw. We have organized and facilitated knowledge exchange workshops with representatives from across Canada. One knowledge exchange was focused on clinician readiness, and the other on system readiness, to ensure not only that the clinicians are ready, but that the other important members of our teams are also ready—namely, nurses, social workers and administrators, among others. We have hosted a three-part fall symposium with specific learning around assessing individuals with mental disorders. We hold monthly case-sharing webinars. We have prepared diligently for the expiration of the sunset clause, and we are ready.
CAMAP members are ready for the planned legislative change in March 2024 and will continue to provide compassionate and high-quality care to all patients considering MAID.
Thank you.
:
Thank you, and good evening from Nova Scotia.
My name is Gord Gubitz, and I am very grateful to be able to speak to you today. I'm a professor of medicine and neurology at Dalhousie University. I became a MAID assessor and provider for both track one and track two patients after legislation was passed.
I'm also a board member for the Canadian Association of MAiD Assessors and Providers, and I sit on their education committee. I was the chair of the national group from CAMAP that developed the MAID curriculum you've heard about, which was discussed earlier. Hopefully we'll have a chance to discuss it in the question period.
I'm also the clinical lead for MAID in Nova Scotia. That involves working on a weekly basis with our administration in collaboration with the Department of Health to oversee MAID in our province.
I'm pleased to speak to you this evening on behalf of Nova Scotia as an example of jurisdictions across the country to help you understand why Nova Scotia stands ready to move forward with caring for people who request MAID for MD-SUMC, starting in March 2024.
Each province and each territory will deal with this differently. In Nova Scotia, we have one central team that is managed and overseen by a very strong administrative staff with skilled nurse navigators who triage and assess patients and provide detailed assessments and referrals. We also have full-time nurse practitioners who work geographically to help provide MAID. In the wake of Bill and in anticipation of the complexities of track two, we have recruited additional members to our team, including social workers, etc.
Our team is involved with regular education with learners across the province. Importantly, our team meets on a regular basis every week on Friday morning to review “challenging cases”, as we call them. Many of these people have complicated medical problems and are often track two patients, many with underlying mental health issues.
With respect to MD-SUMC, we recognized that we would need to start to do this work some time ago, and have been working for over 18 months to ensure that Nova Scotia is ready. We created a provincial working group to develop policies and processes that would serve the MD-SUMC population. It was beneficial to have all of the national work that was done to help guide us.
Our plan was to be ready for the implementation by March 2023. To do this, we hired additional staff with mental health expertise. Thus, one of each of our nurse navigators, nurse practitioners and social workers has a clinical background in mental health. We're in the process of exploring psychology consultancy, and we are recruiting an MD-SUMC clinical lead in psychiatry. This person will hold a position similar to mine but with a focus on mental health. The two of us will work collaboratively with our MAID team, as our skill sets are similar and complementary.
Our working group was chaired by two psychiatrists, one of whom also does complex MAID assessments where capacity is an issue. The working group included members of our core MAID team, hospital and community-based psychiatrists, a specialist in addictions medicine, a bioethicist, a psychiatry resident and representation from our government. As the process moved forward, we included one of our social workers and a nurse navigator with mental health experience.
The working group was tasked with completing a detailed scoping review of the various topics relevant to MAID and MD-SUMC. It developed detailed and practically useful background material and guidance documents that will support clinicians in Nova Scotia in their day-to-day work. We also provided overall governmental recommendations.
To this point, we have an ethical framework that has been based on a systematic review of the emerging area of palliative psychiatry. We have detailed documentation and training materials for the required assessments, including a comprehensive process that focuses on determining capacity, voluntariness, irremediability and structural vulnerability, and understanding suicidality versus a reasoned wish to die. We also have clinical pathways, including a modified intake process that will be completed by the nurse navigator, specifically built for MD-SUMC.
We've followed along with a specific recommendation. One of the two MAID assessors in Nova Scotia must be either a psychiatrist or an addictions specialist, depending on the case.
We are engaged in a prospective review similar to our weekly complex case discussions. Thus, our track two discussions every Friday morning will increasingly begin to involve people with mental health as a sole underlying condition. We will also be undergoing retrospective case audits for each person who completes the process of MAID using a standardized process. We've developed post-intervention supports for clinicians, families and friends.
In conjunction with CAMAP, we are developing training programs, including the modules that have been described previously, and we're looking at compensation models. We have shared all of our documents with the other jurisdictions across the country, as Ms. Campbell outlined in the presentation that she gave. We have engaged in some really interesting provincial and territorial discussions.
Over the coming months—
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It's a good question. We haven't seen these patients yet, so I can only hypothesize for you.
I think the typical patient who will meet these rarest of criteria would have to be someone with a very long, documented history of interacting with the health care system. They've had numerous treatment trials and have documented which ones worked, which ones haven't worked and how long they've had each treatment trial. They've likely had a number of hospitalizations. They've likely seen a number of specialists over the years. It would require all of that. It's not just about having that lived experience. It has to be documented in the system before I, as a clinician, could come up with what's called a medical opinion about whether they meet the criterion of incurability or irremediability.
Very unfortunately, there will be patients with that lived experience who either didn't have it documented or weren't seen adequately through the years by our medical system, for a number of different reasons. Without that robust history being documented, they likely will not be found eligible for this care.
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I think most of us have had experience, over the years, in assessing this difference. It can be complicated.
For a very simple example, I might say that somebody who has a plan to harm themselves has a timeline in which they would do it, has a means of doing so and is expressing it. It's having a kind of intuitive reaction to a negative factor in their life. They might be seen as someone who is acutely suicidal.
Somebody else requesting MAID might come in and tell you they've been talking about this with their family for months or years, and explain what their disease trajectory has been, what their values are, why they believe there's no longer any meaning in their life or why they might want to choose to end their life. They would be willing to work with the team and the clinicians to see whether that's a possibility for them, or whether there are other resources available.
There's a distinct difference between the two.
Thank you to all of our witnesses for joining us and helping our committee go through this topic.
Dr. Green, I'd like to start with you. I appreciate the opening comments that you provided to the committee.
I am curious about the development of the curriculum. We now have the latest module, entitled “MAiD & Mental Disorders”. Are you able to inform the committee, when that module was being developed in the early days, when you became aware that Bill had passed Parliament and this was something you had to start preparing for....? Initially, in the development of that module, are you able to inform the committee what some of the initial feedback or concerns were that you were getting from people whose expertise is in this area?
What were some of the dominant themes they were bringing back that really helped to inform the development of this particular module?
:
Sure. Thank you for the question.
There were some resounding themes as the module was being developed. They decided, as I mentioned before, to go very case-based, because that's where the meat of the matter is. They facilitated discussions so that the people who were teaching were actually subject experts in the area who could lead people through a very nuanced conversation that deals with capacity, voluntariness, irremediableness, the structural vulnerabilities that Dr. Downie mentioned in the last session, and then the concept that Dr. Green was talking about of whether the patient is suicidal or actually has a reason to wish to die, which is not the same thing.
All of those areas where clinicians struggle are basically the meat and potatoes, if you will, of the different cases in the training module, going from fairly simple to more and more complex. This is recognizing that there are probably more complex cases still, and the modules will be reviewed, evaluated and upgraded over time to reflect current practice and may include other examples going forward.
I want to follow up on the same theme as Senator Ravalia, which is the concern that's often raised about whether there will be too much access to MAID for those with mental illness.
It seems to me—given what you've said, Dr. Green, and what you've said, Dr. Gubitz—that the issue is really on the other side. The concern is about access to it. You both highlighted the fact that it's going to be very difficult and that you're going to have to have documentation that people with mental illness might not be able to provide. You're going to have to see earlier documents from people who have treated them in another way, whether or not they have the capacity to put that all together.
We'll go to Dr. Green first. What is your most serious concern coming at it from that perspective?
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There's no evidence that people with those characteristics are actually requesting and receiving MAID in a higher proportion in Canada. We actually have evidence to the contrary.
The increased data that's being collected right now by Health Canada, since January 2023, will be reported in 2024, and it will give us a more fulsome picture of the people who are requesting and receiving MAID. I think that would be helpful.
As with other jurisdictions around the world, we absolutely do not see those drivers for MAID and we don't expect them to be in Canada. We know very clearly, from the very clear eligibility criteria, that socio-economic vulnerabilities on their own do not allow someone to become eligible for MAID.
Obviously, as Ms. Campbell mentioned, people are quite complicated and it's hard sometimes to discern which factors are involved. It's not to say that people with those factors do not come forward and ask for MAID, but there's a difference between that and a screaming headline that says someone with a vulnerability is trying to access MAID. There's a difference between being assessed for MAID and being found eligible for MAID. It's important that this committee keep that in mind.
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I think we know that for MAID in general, the involvement of a MAID assessment will often improve the health care of the person. For example, if they have not accessed palliative care services, and they do, they find some benefit so that they don't have to have a medically assisted death and can die comfortably under the care of palliative care. That's an example generally speaking.
I think that if we are being truthful about how we assess people with mental health disorders, we sometimes need to push the standard a bit, go into the depths and ask, “What have you tried? What have you not tried? Oh, I found this. It's something you might be interested in thinking about, and it's something we could trial to see if it makes sense for you.” That's the reason we have to have people who have expertise in the subject area.
As Dr. Downie mentioned, it doesn't necessarily need to be a psychiatrist, because many primary care physicians who have been looking after certain populations of patients are experts in their treatment. It's really about knowing the condition, knowing the patient and getting a sense of “Have I really done my due diligence in caring for this person?”
:
Thank you very much, Mr. Chair.
Dr. Green, I guess I will finish this round with you.
If it had not been for Bill , which Parliament passed really quickly, we would, of course, be living in a country right now where mental disorders as a sole underlying medical condition would be eligible for MAID.
Looking at it from British Columbia's perspective, how did that additional year factor into the degree of preparation in our province? According to you, given how involved you are in this, when was the determination made that our province was ready, approximately? I'm just trying to walk backwards in the timeline here.
:
I call the meeting back to order.
Colleagues, we will resume at this time.
I'd like to welcome our main witness, but there are two. We have a second person there in case additional backup is needed.
We welcome Dr. Jitender Sareen, a physician with the department of psychiatry at the University of Manitoba, by video conference. He is accompanied by Dr. Pierre Gagnon, director of the department of psychiatry and neuroscience at Université Laval. Welcome to you both.
Dr. Sareen, you will have five minutes for your opening remarks, and then we'll go right into the first round of questions. We have one witness presenting testimony to start.
Dr. Sareen, the floor is yours for five minutes.
:
Thank you so much, Chair.
Thank you for the opportunity to speak to the Special Joint Committee on Medical Assistance in Dying.
I would like to acknowledge that the University of Manitoba campuses are located on the original lands of the Anishinabe, Cree, Oji-Cree, Dakota and Dene peoples, and on the homeland of the Métis nation. We respect the treaties that were made on these territories, acknowledge the harms and mistakes of the past and dedicate ourselves to moving forward in partnership with indigenous communities in a spirit of reconciliation and collaboration.
With regard to this testimony, I have no conscientious objection to MAID. I am an adult psychiatrist with clinical and research experience in suicide prevention for over 20 years, with over 400 peer-reviewed publications, 150 in suicide prevention.
In 2019, I testified on behalf of the Attorney General of Canada in the Truchon case. I co-chaired the federal 2016 expert panel on suicide prevention in the military with Dr. Rakesh Jetly.
Today, I am representing the department of psychiatry at the University of Manitoba and Shared Health in Manitoba. I am here with Dr. Pierre Gagnon, department chair of psychiatry at Université Laval, but we are also representing six other department chairs of psychiatry departments in multiple provinces in the country: Jack Haggarty from the Northern Ontario School of Medicine, Karin Neufeld from McMaster, Gustavo Turecki from McGill, Sarah Noble from Memorial University, Simon Hatcher from the University of Ottawa, and Leslie Flynn from Queen's University. Collectively, we have decades of experience in clinical practice, suicide research and responsibility for education and training of psychiatrists and medical learners.
We strongly recommend an extended pause on expanding MAID to include mental disorders as the sole underlying medical condition in Canada, because we're simply not ready. In our experience, people recover from long periods—“long” meaning decades—of suffering with depression, anxiety, schizophrenia and addictions with appropriate evidence-based treatments. We strongly believe that making MAID available for mental disorders will facilitate unnecessary deaths in Canada and negatively impact suicide prevention efforts. The clinical role is to instill hope, not to lead patients toward death.
We have carefully reviewed the 2023 Health Canada model standard for MAID. In September 2023, we wrote to the federal ministers expressing the following concerns. The standard does not require the involvement of a psychiatrist in the assessment process for all MAID assessments for mental disorders. There is no international or accepted definition of irremediability in mental disorders and addictions; you can look at past treatments, but the most important question is what is going to happen in the future. There is no accepted operational definition to differentiate suicidal ideation and medical assistance in dying requests among people who are not dying. There are inadequate safeguards to protect vulnerable groups that are disproportionately affected by mental disorders. Due to geographic barriers, patients in underserved areas will be more likely to obtain MAID instead of evidence-based care. International experience has clearly demonstrated that MAID is being used in common and treatable mental disorders and is not reserved for the very rare and refractory conditions. The Health Canada standard does not guide psychiatrists on how many treatment trials are required before recommending MAID, because there's no evidence on this particular issue.
The proponents of MAID believe that it is discriminatory to exclude people with mental disorders from accessing MAID, but we completely disagree with this. Equity does not mean each person gets the same treatment. Unlike physical conditions that drive MAID requests, we do not understand the biological basis of mental disorders and addictions, but we know that they can resolve over time. The real discrimination and lack of equity is not providing care for people with mental disorders and addictions.
Advocates of expanding MAID suggest that only a small fraction of psychiatrists need to be trained to prepare for MAID in 2024. Again, we disagree. Should MAID eligibility expand, all Canadian psychiatrists will need to grapple with how to deal with suicidal ideation in the context of mental illness. They will need to determine when to refer for MAID versus addressing suicidal ideation with medications, treatment and sometimes involuntary hospitalization.
Repeated Canadian surveys demonstrate that most psychiatrists are not in favour of MAID, and the Canadian Mental Health Association and the Canadian Association for Suicide Prevention are against the expansion of MAID to include mental disorders. Finally—
Again, I have seen it personally. The story I was going to tell you was about a patient of mine who had stroke-related OCD symptoms in her sixties. I treated her for about two to three years with different types of medication. We tried ECT, and over a five-year period, we were able to get her feeling better. She was able to live 10-15 years afterwards, and she only died related to COVID.
Again, the science is not there. As you said, when you have cancer, a physical biology is driving the death. In mental disorders, there is no biological factor. This is where irremediability is impossible to define.
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No, that's not how I perceive it. The important thing to note is around suicide contagion. When a society makes MAID available, the population believes it is a way to end suffering. In other jurisdictions that have had MAID available for mental disorders, not only are there deaths due to MAID, but there are also deaths related to non-MAID suicides.
I just want to emphasize that it's not a suicide prevention mechanism. It's really a way.... We're actually going to make not only suicide deaths go up, but also MAID deaths go up.
I really want to emphasize that people have lots of untreated mental illnesses and addictions in our society, and we should be spending a lot more energy on trying to make sure that people are getting evidence-based care, rather than focusing as much on MAID. There have clearly been reports about people in British Columbia showing up to the emergency department and somebody saying, “Have you thought about MAID?” We've had veterans who have been asked if they would rather have MAID, instead of a wheelchair.
We really have to be thoughtful about the unintended consequences here of making MAID available for mental disorders in Canada, and these safeguards are false reassurances.
Really, we don't agree with proceeding at this point.
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I'm going to answer in French, if that's all right.
No, there isn't a consensus. That is why the National Assembly of Quebec decided not to expand MAID to individuals whose sole medical condition was a mental disorder. Quebec went through that whole debate, and obviously, the Association des médecins psychiatres du Québec had a say, among others.
What Dr. Sareen just said is absolutely true. The same thing was said in Quebec. We can't move forward with this right now. We aren't ready. That is why the National Assembly of Quebec chose not to even put the issue on its agenda. It's too complicated. The issue is controversial among patients, families, members of the public, psychiatrists, politicians and so on.
It's something that requires lengthy study. That's why Dr. Sareen called for an indefinite pause on the measure. It's extremely complex and causes controversy on every level.
:
Thank you very much, Mr. Chair.
I would like to move a motion: That the committee order the immediate production of the CAMAP curriculum module seven, “MAiD & Mental Disorders”.
Let me just very briefly comment, if I may, with respect to the motion that I've now moved.
We have been, as a committee, repeatedly told to trust the CAMAP curriculum, that it is robust and that we can have the assurance that the training is of the highest quality possible. A key question on the issue of whether are we ready for MAID and mental illness is the question of irremediability, being able to accurately predict irremediability, as well as distinguishing between a rational request for MAID and suicidal ideation.
CAMAP was asked three times, by me, to provide the criteria in their curriculum. They were unable to do so. They were unable to do so when Senator Martin followed up. They said it's all very complicated and it's a case-by-case basis. That is precisely what the expert panel said, and it is precisely the reason that the chairs of psychiatry wrote a letter calling on the government to delay the implementation of MAID for mental illness, which would have come into effect in March 2023. It was very disappointing that when CAMAP was asked about providing the curriculum to the committee, this was met with reluctance.
Mr. Chair, this committee, as a standing committee, has the power to compel production of documents. Unless CAMAP can point to a specific provision, by way of legislation, that would protect them from providing this committee with that curriculum, they must do so if this committee adopts such a motion; otherwise, they will be in contempt of Parliament.
Given the seriousness of the issues at hand and the degree to which this curriculum is being relied upon to justify to this committee that we're ready for MAID and mental illness, CAMAP has an obligation to provide this committee with that curriculum. It ought not be one big secret.